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Caregiver: A person who gives care to people who need help taking care of themselves. Examples include children, the elderly, or patients who have chronic illnesses or are disabled. Caregivers may be health professionals, family members, friends, social workers, or members of the clergy. They may give care at home or in a hospital or other health care setting.
National Cancer Institute (www.cancer.gov)

Those of us with Parkinson's who are fortunate to have one or more caregivers in our live's probably have no idea how we would fare without them. However it is a fact that caregiver's themselves face a tremendous amount of stress, and often fail to take adequate care of themselves. One might well ask, who takes care of the caregivers?

The following links will take the reader to resources useful to caregivers (some are specific to Parkinson's, others are not).
Caregiver Coalition of San Diego
The Caregiver Coalition of San Diego represents the community efforts of a diverse group of agencies, private, public, professional, non-profit, and for profit that serve families caring for their loved ones. Our collective mission is one of support, education, and advocacy. Their website houses a webinar library with helpful videos on a variety of topics, tools, and resources to support caregiving efforts.
Caregiver Bill of Rights
Caregiver Handbook
Ride Well to Age Well Handbook

The U.S. Food & Drug Administration
The FDA Tips for Caregivers website provides tools to help caregivers manage the care of their loved ones. The website provides tips for caregivers of older adults, young children, teens and people with special needs. The website also highlights 7 tips for all caregivers to know.
(Click here to read more.)

ARCH National Respite Network and Resource Center
Respite is planned or emergency care provided to a child or adult with special needs in order to provide temporary relief to family caregivers who are caring for that child or adult.
The mission of ARCH is to assist and promote the development of quality respite and crisis care programs throughout the United States; to help families locate respite and crisis care services in their communities; and to serve as a strong voice for respite in all forums
. (Click here to read more).

San Diego Union Tribune October 23, 2012
Caregiving is a rewarding act of love, but it is not always easy. Depending on the support your loved one needs, caregiving can strain you physically and emotionally. It can even put your own health at risk. How do you know if you are experiencing caregiver stress? (Click here to read).

Mayo Clinic
Caregiver stress, tips for taking care of yourself. Caring for a loved one strains even the most resilient people. If you are a caregiver, take steps to preserve your own health and well-being. (
Click here to read).

The Imperfect Caregiver blog
The stresses of caregiving may lead to a greater risk of chronic disease, either from the effects of stress, from the impact of an increased workload (poorer sleep, greater fatigue and depression), or from less attention to one's own health (shown in less preventive care, poorer diets, or fewer opportunities to exercise). Caregivers can use all the help they can get. The Imperfect Caregiver is an online resource with many ideas and resources
(Click here to read).

Parkinson’s Foundation
You can’t be a good caregiver to someone else if you don’t take care of yourself, and taking care of yourself requires finding balance in your life. Regular breaks from caregiving are an essential part of this balance. (
To read more, click here.)

Southern Caregiver Resource Center
SCRC serving residents of San Diego County who are caregivers of adults with chronic and disabling conditions or diseases. The SCRC offers many programs and services. (
For more information, click here).

The National Care Planning Council
The NCPC handbook is written primarily for a caregiver. It is not a 'how-to' book focused on problems of the ill patient. It offers practical approaches to common caregiver problems. Staying healthy, avoiding depression, remaining active, making friends, enjoying pleasurable activities are an essential part of any human life - including those of caregivers. (
Click here to read).